
I look completely normal but I hide
A deep seated burden inside
Of chronic illness that does not
Allow me to be carefree- the thought
Of instability is never far from my mind
If I am not careful I know I can find
Myself in deep trouble, even a life-threatening emergency
I have to plan for every contingency..
*
You may wonder why I often do not go
Along with your spur of the moment plans, you should know
That plans in my life are rarely made on the spot
Behind my seemingly spontaneous decisions is much thought
I can conquer the world if I am well prepared
To tackle my condition, but I can crash if caught unaware
*
Although I think I manage my condition quite well
On a false sense of security, I never dwell
Unpredictability is the name of the game
No matter how much this illness I tame
*
The constant reminder of my illness
Sometimes gets overwhelming, I confess
I long to do things and go places without
Having to consider my limitations throughout..
*
I am still learning to take life day by day
I know I can easily get carried away
In catastrophizing when things do not appear conducive
But then go back to safety and stability- with this dichotomy I live

I wonder how many people we know who are like this, but to us seem ‘completely normal’? This is thought-provoking.
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There are many people battling chronic illnesses, unfortunately some are incompletely understood. Especially after COVID, there has been a rise in chronic autoimmune conditions that impact people’s quality of life.
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Great post. I have a chronic disease so I can relate to what was said in the article. I remember someone telling me when they found out about my illness they said, “ but you like fine.”
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Thank you!
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